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How to Accelerate Lupus Solutions with RWD

Webinar Replay

Watch this informative webinar replay to explore lupus solutions and real-world treatment impacts through a discussion on patient aspects and the role of technology in streamlining research efficiency. Lupus is a complex disease with diverse manifestations, limited treatment options and inequitable impact on the affected population. This makes research into patient experience, treatment patterns and long-term clinical outcomes particularly challenging.

Attendees will gain insights into:

Key patient-relevant features that should be covered by RWD in lupus
The potential of RWD to improve the understanding of the patient and caregiver experience/needs and accelerate clinical research into the development of new treatment options
How technology can play a bigger role in enabling trial recruitment and reducing the data collection burden for patients, care teams and researchers

Webinars

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Published on:

November 28, 2023

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Speakers

Dr. Kaleb Michaud

Professor, Division of Rheumatology, Director, Rheumatology Fellowship Research Program, University of Nebraska Medical Center As a lifelong patient, Dr. Kaleb Michaud’s experiences have powered his passion and dedication to improving rheumatology and patient outcomes. He serves as Director of Forward, The National Databank for Rheumatic Diseases, a long-term, open-cohort observational study with over 50,000 enrolled participants. He leads the University of Nebraska Medical Center RAIN clinical database and collaborates with VARA, RISE and other registries. A scholar in pharmacoepidemiology, health informatics and cost-effectiveness, Dr. Michaud prioritizes mentoring and volunteering to grow the next generation of Healers, Scientists and difference-makers.

Dr. Patti Katz

Professor, Medicine, University of California San Francisco Dr. Patricia Katz is currently Emeritus Professor of Medicine and Health Policy at UCSF. She has authored more than 300 publications, and has received grants from a variety of sources including the National Institutes of Health (NIH) , Department of Defense, and the Rheumatology Research Foundation (RRF). Her research has followed two main paths: measurement of patient-centered outcomes, and the impact of “lifestyle” factors such sleep, obesity, and physical inactivity on clinical and patient-centered outcomes. Dr. Katz is a past Editor-in-Chief of Arthritis Care & Research and the current co-Editor-in-Chief of ACR Open Rheumatology. Dr. Katz received the ARHP Distinguished Scholar Award in 1997, the STAR Award in 2005, the ARHP Presidential Award in 2003 and 2010, the ARHP Lifetime Achievement Award in 2015, and ACR Excellence in Investigative Mentoring Award in 2019.

Frederico Calado

Vice President, Global Real-World Solutions, Alira Health Frederico Calado is currently leading the Real-World Solutions team at Alira Health. His focus is to develop and deliver value-add data and evidence-based solutions for their customers, across the contiguous areas of clinical development, medical affairs, RWE and HEOR.

Frederico ’s experience includes: Head of RWE Innovation & Partnerships, Health of Data Policy Director, Real World Evidence (RWE) Director and Health Economics & Outcomes Research (HEOR) Director in both global and country positions. Before joining Novartis, he worked in access-related roles in pharma, consultancy and academia. Frederico holds a PharmD degree from the University of Lisbon with a post-graduation degree in epidemiology and a master’s degree in economic evaluation for health technology assessment from the University of York.