Myasthenia Gravis Registry
Gather Unique Insights and Accelerate Myasthenia Gravis Solutions
Using the Patient Registry
Myasthenia gravis (MG) is an ultra-rare disease with multiple implicated antibodies which makes patient involvement in research challenging. However, patient insights are crucial for discoveries that can lead to better treatments and improved quality of life.
Overcome this challenge by accessing the Global MG Patient Registry thanks to our exclusive partnership with the Myasthenia Gravis Foundation of America (MGFA), the leading patient advocacy organization dedicated to curing MG and improving patients’ lives.
Partner with us and leverage the MGFA Global MG Patient Registry to design and conduct new research studies and clinical trials aimed at finding better treatments and a cure for MG.
Data from +3,750 patients
10+ years of retrospective data
Longitudinal data collection updated every 6 months
Why Choose the MGFA and Alira Health MG Registry?
Clinical and claims data sets lack essential patient reported information such as MG activities of daily living profile score. Real-world insights into lives of people with MG can strengthen disease understanding throughout the product life cycle and impact both treatment and routine care. By leveraging the MGFA Global MG Patient Registry, you get:
- Access to the largest engaged MG community
- Actionable patient journey insights from existing and prospectively collected data
- Collaboration with the registry steering committee comprising leading MG key opinion leaders
- Access to our real-world evidence experts to design retrospective studies, leveraging their familiarity with the dataset and challenges in the MG space
