The Lupus Journey: Addressing Unmet Patient Needs
Webinar Replay
The journey of people with lupus is complex and heterogeneous. With multiple lupus subtypes – from systemic to cutaneous to lupus nephritis – and with social determinants and demographics playing a huge factor, understanding the “typical” patient journey can be tough.
In this session, a rheumatologist specializing in lupus gives us an overview of the variety of patient journeys she sees on a daily basis. We also hear one patient’s unique experience, from diagnosis to treatment, from flares to low disease activity. And we hear a patient engagement expert perspective on how to apply these learnings across the lifecycle of any lupus program.
Moderator
Jennifer Lannon
Director, Partnerships, Real-World Solutions, Alira Health
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Jennifer Lannon leads partnerships with real-world data holders at Alira Health, including the FORWARD Lupus Registry partnership. Previously, she led Business Development at Savvy Cooperative, helping life science and healthcare businesses gather insights from patients.
Jennifer has always had a passion for helping patients in their healthcare journeys. She is the co-founder of Freeze Health, an informational platform helping women decide if, when and where to freeze their eggs. She and her co-founder started Freeze when they were exploring their own egg freezing options. She has been seen in outlets such as Good Morning America, the New York Times, BBC, and the Washington Post. She is a Board-Certified Patient Advocate and holds a Bachelor of Science in cell biology and genetics from the University of Maryland, College Park.
Watch this webinar if you would like to:
- Identify similarities and differences in the patient journey between subgroups of people with lupus.
- Hear one patient’s complex journey of diagnosis and treatment of lupus.
- Translate the insights of the lupus patient journey into value-added takeaways for your lupus asset.
Speakers
Christina McGuirk
Lupus Warrior
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Christina McGuirk has been diagnosed with SLE for over 30 years. She was diagnosed when she was 21 years old. In the past 30 years she has navigated through SLE flares as she became a nurse, wife, mother, nursing executive, and an LFA ambassador. She continued her academic studies over the years and has a Doctorate in Nursing Practice, master’s in healthcare administration and holds two certifications in executive nursing.
Jennifer L. Medlin, MD
Assistant Professor, Division of Rheumatology, University of Nebraska Medical Center
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Dr. Medlin attended medical school at the University of Nebraska Medical Center (2009–2013), completed her Internal Medicine residency at the University of Wisconsin Hospital and Clinics (2013–2016), and pursued a Rheumatology fellowship at the University of North Carolina at Chapel Hill (2016–2018). She has been a faculty member at the University of Nebraska Medical Center since 2018, where she serves as the Director of the Lupus Clinic and Co-director/Founder of the multidisciplinary Rheumatology/Dermatology Clinic. Dr. Medlin also teaches musculoskeletal ultrasound to trainees at the university and nationally through USSONAR.
Giulia Pierini
Principal, Patient Engagement at Alira Health
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Giulia Pierini has a wealth of experience in marketing and sales for big pharma. She also worked as a researcher in the Department of Cellular Biotechnology & Hematology of the University of Rome “La Sapienza.”
She gained knowledge about the pharmaceutical industry at Johnson & Johnson Medical and Bristol Myers Squibb, working in the neurosurgery, neurovascular, and cranio-maxilla facial fields, mainly in the operation room in direct contact with surgeons and patients.
She then transitioned to consulting and she has been involved in 20-plus strategy projects in the pharmaceutical and medical device industry related to multiple therapeutic areas, including R&D, diagnostic, dialysis, respiratory, and oncology.
Having worked in the operation room for several years, she is a fierce supporter of the importance of the impact of business functions on patients’ lives.
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